COMMITTEE

PROJECT COORDINATOR Prof. Bernardo Dalla Bernardina - Centro Ricerca Epilessie in Età Pediatrica 

 

SCIENTIFIC COMMITTEE

Dr. Francesca Darra and Professor Renzo Guerrini on behalf of Residras Scientific Committee - Italy

Prof. Rima Nabbout - France

Prof. Helen Cross - UK

Prof. Rikke Steensbjerre Møller - Denmark

Prof. Lieven Lagae - Belgium

Dr. Gunning Boudewijn - Netherlands

 

DATA AND PRIVACY MANAGER

Fondazione Gabriele Monasterio – Luciano Ciucci 

 

REGISTER MANAGER FOR PRIVACY AND DATA

Fondazione Toscana G.Monasterio: Dr. Fabrizio Bianchi – Manager for Tuscany Register of Rare Diseases and Tuscany Register for Congenital Defects

 

DRAVET ITALIA ONLUS: Brambilla Isabella

 

PATIENT ASSOCCIATIONS

Dravet Italia Onlus

Dravet Syndrome European Federation

Other Country Associations

 

REFERENTS DATA ANALYSIS

Dr. Gaetano Cantalupo

Dr. Federica Pieroni